Publications in Press: Global Multiple Sclerosis Patient Registry for research, MS treatment and patient education

Publications

 

Click for a full listing of NARCOMS publications [PubMed]
 
Publications validating NARCOMS data and instruments:
 
1.     Hohol, M.J., Orav, E.J., Weiner, H.L. (1995). Disease Steps in Multiple Sclerosis: A Simple Approach to Evaluate Disease Progression. Neurology. 45, 2, 251-255. http://www.ncbi.nlm.nih.gov/pubmed/7854521
 
2.     Horton, M., Rudick, R.A., Hara-Cleaver, C., Marrie, R.A. (2010). Validation of a Self-Report Comorbidity Questionnaire for Multiple Sclerosis. Neuroepidemiology, 35, 2, 83-90. http://www.ncbi.nlm.nih.gov/pubmed/20551692
 
3.     Marrie, R.A., Cutter, G., Tyry, T, Campagnolo, D. & Vollmer, T. (2009). Smoking status over two years in patients with multiple sclerosis. Neuroepidemiology, 32, 72-79. [Epub Nov. 12, 2008] http://www.ncbi.nlm.nih.gov/pubmed/19001800
 
4.     Marrie, R.A., Cutter, G., Tyry, T, Campagnolo, D., & Vollmer, T. (2008). Validation of the NARCOMS Registry:  Depression Assessment. International Journal of MS Care, 10, 81-84. http://ijmsc.org/doi/abs/10.7224/1537-2073-10.3.81
 
5.     Marrie, R.A., Cutter, C., Tyry, T, Campagnolo, D., & Vollmer, T. (2007). Validation of the NARCOMS Registry: Diagnosis. Multiple Sclerosis Journal, 13, 770-775. http://www.ncbi.nlm.nih.gov/pubmed/17525097
 
6.     Marrie, R.A., Cutter, G., Tyry, T., Hadjimichael, O., Campagnolo, D. & Vollmer, T. (2005). Validation of the NARCOMS Registry: Fatigue Assessment. Multiple Sclerosis Journal, 11, 5, 584-584. http://www.ncbi.nlm.nih.gov/pubmed/16193897
 
7.     Marrie, R.A., Cutter, G., Tyry, T., Hadjimichael, O., & Vollmer, T. (2004). Validation of the NARCOMS Registry: Pain Assessment. Multiple Sclerosis Journal, 11, 338-342. http://www.ncbi.nlm.nih.gov/pubmed/15957517
 
8.     Marrie, R.A., Cutter, G., Tyry, T., Vollmer, T. & Campagnolo, D. (2007). Disparities in the management of multiple sclerosis-related bladder symptoms. Neurology, 68, 1971-1978. http://www.ncbi.nlm.nih.gov/pubmed/17548546
 
9.     Marrie, R.A., Goldman, M.D. (2007). Validity of Performance Scales for disability assessment in multiple sclerosis. Multiple Sclerosis Journal, 13, 9, 1176-1182. http://www.ncbi.nlm.nih.gov/pubmed/17623733
 
10.   Marrie, R.A., Goldman, M.D. (2011). Validation of the NARCOMS Registry: Tremor and Coordination Scale. International Journal of MS Care, 13, 3, 114-120. http://ijmsc.org/doi/abs/10.7224/1537-2073-13.3.114
 
11.   Schwartz, C.E., Vollmer, T., Lee, H. (1999). Reliability and Validity of Two Self-Report Measures of Impairment and Disability for MS. North American Research Consortium on Multiple Sclerosis Outcomes Study Group. Neurology. 52, 1, 63-70. http://www.ncbi.nlm.nih.gov/pubmed/9921850
 

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